14 years laters… STILL NOTHING

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  • 5 July 2025 at 8:46 PM #2357
    Debss
    Participant

    I think it’s quite funny (not funny haha, funny weird) how after starting my period at the age of 13 and experiencing all of the same symptoms and even worse at the age of 27, and learning about endometriosis, adenomyosis and everything else you’re kind of snapped into this reality of how long you’ve actually been suffering for. I go through my medicine how many times I have been to A&E not a single solution, diagnosis or even acknowledgement of a wider issue. And now I am 27 years old still bouncing from Dr to Dr searching for that diagnosis. Going private has definitely been an enlightening journey because I feel like at least I’m not going through medical gaslighting but to have a dr sit opposite me and tell me they don’t know what I’d wrong with me is just nothing short of bloody frustrating. Any tips on how people got their diagnosis?

    6 July 2025 at 3:20 PM #2365
    rashidaaaa
    Keymaster

    Literally. One of the hardest parts about having these conditions whether you’ve been officially diagnosed or not, is realising how many years you’ve actually been suffering for, and how many years you’ve been fighting just for drs to actually take you seriously. The physical, mental, emotional, and financial toll it has is absolutely horrible. People will never understand unless they’re in our shoes. One thing I’d say, don’t allow these drs to intimidate you. Go to your appointments with all of the facts literally written down. Once I wrote a letter to my GP telling him that I feel like my condition isn’t being taken seriously enough (pre diagnosis), that’s when he really LOCKED IN. Don’t be afraid to question and argue with drs. I know it’s draining but trust me, the more confident you are, they won’t play in your face, and if you don’t want to take something, say NO

    25 July 2025 at 6:14 AM #2431
    ruqayahc98@icloud.com
    Participant

    Hi

    Just came here to express the same sentiments, I’ve had bad periods since the age of 16 (I’m now 27) and went a few times only to be told this was normal and blamed my BMI at one point despite having problems at a healthy weight and told it would continue until I was 30…

    I’ve since gone back many times from 22 onwards, tried the pill, had every test they’ve offered, bloods taken, ultrasounds, hysteroscopies and they still have no idea what’s wrong with me. I’m tired of hormonal solutions, I just want to understand from a medical perspective, how it is possible for a period to last 3 weeks, how I can cramp the entire time and experience severe pain the whole time. I’m currently on norehisterone which will stop it briefly but as soon as I’m off it as it makes me gain weight, my period will just come back again. Honestly don’t know what to do anymore.

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