Home Page › Forums › Pain & Flare ups › Emergency Room Visit & Bad Flare Up Days › I’m tired
- This topic has 3 replies, 3 voices, and was last updated 4 days, 22 hours ago by
Clarisseee.
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1 September 2025 at 12:23 PM #2442
cici
ParticipantI am about a week into one of the worst flare ups of my life and I don’t know if I actually have anything of substance to say other than I’m in pain and tired and frustrated because I can’t do ANYTHING.
I can barely even walk to the bathroom and I’m restricting my water intake just so I don’t have to use the toilet as often. I feel lonely and isolated because nobody gets it, I gotta rely on my parents to get me everything.
I have started to be sick most days which might be a bad reaction to tramadol but there’s also a small chance I might be pregnant (God forbid). I’m tired man. I miss when I was healthy and okay. It’s not fair.
At the beginning of August I got signed off work for a month but I’m due to start again in about a week and I have nooooo idea how I’ll manage that, like at all, and I feel terrible. Work is a whole other issue where my manager has discriminated against me and threatened me with losing my job, doesn’t let me sit down etc. I don’t know if I can handle it even if I’m magically physically able by Sunday.
I need better meds that actually help and a job that is tolerant and allows me to work from home. I have next to no hope. Not to be dramatic but this illness has ruined my life.
5 September 2025 at 8:17 AM #2443rashidaaaa
KeymasterOh baby not the pregnancy! Have you done a test first of all?😭 second of all, I am so sorry I genuinely get what you’re saying. Flare ups are such a mind fuck mentally, emotionally, physically. No one truly gets the pain we feel internally no matter what they see and it’s such a lonely and frustrating journey. Have you tried getting PIP?
30 September 2025 at 4:53 PM #2451cici
Participantomg so i didn’t see this before. update, i’m not pregnant which is fantastic 🤣 and thank you so much for the kind words. i’ve tried getting PIP to no avail and it’s such a long and arduous process it just feels like a huge waste of time to try again, but maybe i might
5 October 2025 at 8:12 PM #2457Clarisseee
ParticipantHey girl, I hope you are feeling a bit better. Lord this condition makes you feel like a prisoner in your own body. It’s sooo devastating to our body, mind, everything!! Having to start all over again with everything after each flare up.
Also in regards to your job!! Please don’t let them make you feel some type of way and do not leave, you can SUE them for disability discrimination, failure of duty of care etc. Please put a referral to OH asap, let then know in writing what’s going on your condition everything. Make sure everything is in writing. They should have made reasonable adjustments for you, and them not doing that knowing you have a disability can go under as disability discrimination. If you need further help or advice I can help ( I’m taking my employer to court )
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